Heading: |
Spinal Muscular Atrophy: Babies |
Question ID: |
1797084 |
UIN: |
48033 |
House: |
Commons |
Date tabled: |
2025-04-24 |
Asking Member ID: |
5296 |
Asking Member display name: |
Freddie van Mierlo
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Asking Member handle: |
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Asking Member Twitter reference: |
Freddie van Mierlo
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Member interest: |
false |
Question text: |
To ask the Secretary of State for Health and Social Care, what recent discussions he has had with the UK National Screening Committee on timelines for implementing in-service evaluation of newborn screening for spinal muscular atrophy. |
Is named day: |
true |
Date of holding answer: |
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Date answered: |
2025-04-29 |
Date answer corrected: |
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Is holding answer: |
false |
Is correcting answer: |
false |
Answering Member ID: |
4981 |
Answering Member display name: |
Ashley Dalton
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Answering Member handle: |
AshleyDalton_MP
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Answering Member Twitter reference: |
@AshleyDalton_MP
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Correcting Member ID: |
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Correcting Member display name: |
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Correcting Member handle: |
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Correcting Member Twitter reference: |
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Answer text: |
The UK National Screening Committee (UK NSC) is working with the spinal muscular atrophy (SMA) partnership board to scope out the potential shape of the in-service evaluation into SMA. The partnership board includes clinicians, academics, patient represen... |
Original answer text: |
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Comparable answer text: |
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Answering body ID: |
17 |
Answering body name: |
Department of Health and Social Care |
Tweeted: |
true |