| Heading: |
Spinal Muscular Atrophy: Babies |
| Question ID: |
1797086 |
| UIN: |
48035 |
| House: |
Commons |
| Date tabled: |
2025-04-24 |
| Asking Member ID: |
5296 |
| Asking Member display name: |
Freddie van Mierlo
|
| Asking Member handle: |
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| Asking Member Twitter reference: |
Freddie van Mierlo
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| Member interest: |
false |
| Question text: |
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of launching newborn screening for Spinal Muscular Atrophy alongside the upcoming launch of newborn screening for severe combined immunodeficienc |
| Is named day: |
true |
| Date of holding answer: |
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| Date answered: |
2025-04-29 |
| Date answer corrected: |
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| Is holding answer: |
false |
| Is correcting answer: |
false |
| Answering Member ID: |
4981 |
| Answering Member display name: |
Ashley Dalton
|
| Answering Member handle: |
AshleyDalton_MP
|
| Answering Member Twitter reference: |
@AshleyDalton_MP
|
| Correcting Member ID: |
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| Correcting Member display name: |
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| Correcting Member handle: |
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| Correcting Member Twitter reference: |
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| Answer text: |
The UK National Screening Committee (UK NSC) is working with the spinal muscular atrophy (SMA) partnership board to scope out the potential shape of the in-service evaluation into SMA. The partnership board includes clinicians, academics, patient represen... |
| Original answer text: |
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| Comparable answer text: |
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| Answering body ID: |
17 |
| Answering body name: |
Department of Health and Social Care |
| Tweeted: |
true |