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209455 |
|
|
209455 |
|
|
209455 |
|
|
Make Orkambi available on the NHS for people with Cystic Fibrosis |
|
|
Conventional CF treatments target the symptoms of CF, precision medicines like Orkambi tackle the cause of the condition. Though Orkambi is not a cure, it has been found to slow decline in lung function, the most common cause of death for people with CF, by 42% |
|
|
In July 2016, the National Institute of Clinical Excellence (NICE) recognised Orkambi as an ‘important treatment.’ They were, however, unable to recommend the drug for use within the NHS on grounds of cost effectiveness and a lack of long-term data.
We are calling on the British Government to call for a resolution to ongoinging negotiations between Vertex Pharmaceuticals, NHS England and NICE as a matter of the utmost urgency. It is essential that a fair and sustainable agreement is found. |
|
|
2018-01-12T16:25:32.009000+00:00 |
|
|
2019-05-28T16:32:32.774000+00:00 |
|
|
2018-07-17T22:59:59.999000+00:00 |
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