Subject Predicate Object
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a
Resource
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E-petition
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external identifier
264151
UK Government and Parliament Id
264151
e-petition UK Government and Parliament Id
264151
action
Introduce new-born screening for Adrenoleukodystrophy in hospitals across the UK
background
This petition is to introduce screening for all new-borns across the UK for the genetic condition ALD, if the disease is found early on it is less likely to be terminal and can be treated. Adrenoleukodystrophy (ALD) affects 1 in 17,000 individuals (males and females) worldwide.
additional details
References: https://www.alextlc.org/what-is-a-leukodystrophy/the-different-leukodystrophies/ https://www.derbyshiretimes.co.uk/news/chesterfield-fc-give-brave-young-boy-10-with-rare-genetic-brain-disease-chance-to-lead-out-spireites-on-saturday-1-9674806 https://www.newbornscreening.info/Parents/otherdisorders/X-ALD.html
created at
2019-06-10T12:00:49.964000+00:00
updated at
2019-07-10T22:18:42.000000+00:00
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