§ Mr. OatenTo ask the Secretary of State for Health what funding he is making available for(a) research into and (b) greater awareness of primary progressive multiple sclerosis. [61564]
§ Ms Blears[holding answer 13 June 2002]: The main Government agency for research into the causes of and treatments for disease is the Medical Research Council (MRC) which receives its funding via the Department of Trade and Industry. The Department funds research to support policy and the delivery of effective practice in the national health service.
The Department and MRC spend for 2001–02 is estimated at £2.2 million on research into multiple sclerosis. This includes spend on basic work on a whole range of autoimmune disease.
We are not making funds available directly for increasing awareness of primary progressive multiple sclerosis. The Department and the drug manufacturers have, however, agreed on an innovative way to secure disease modifying therapies on behalf of multiple sclerosis (MS) patients. The scheme allows patients with MS meeting the criteria of the association of British neurologists to be treated cost-effectively on the NHS. The scheme started on 6 May 2002 and is backed by statutory directions to ensure there is no postcode prescribing of these treatments.
My hon. Friend the Minister of State (Jacqui Smith) announced on 12 June 2002 at the college of occupational therapists "Making Waves" conference that the national service framework (NSF) for long-term conditions will have a particular focus on the needs of people with neurological conditions and brain and spinal injury, and also address some of the common issues faced by people living with long-term conditions. We are now considering the next stage of work, which includes selecting and appointing an external reference group and developing further the communication and consultation strategy. We expect to publish the NSF in 2004 and to start implementation in 2005.