§ Miss McIntoshTo ask the Secretary of State for Health (1) what NHS provision is planned for the diagnosis of and research into Ehlers-Danlos Syndrome after the closure of MRC Connective Tissue Genetics Group in Cardiff; and where a practitioner who suspects Ehlers-Danlos Syndrome in a patient will refer the patient after November; [137202]
(2) what representations he has received on the non-provision of those suffering from Ehlers-Danlos Syndrome from clinical genetic diagnosis, counselling and screening care under the National Health Service; and if he will make a statement. [137203]
§ Mr. DenhamI refer the hon. Member to the reply I gave to the right hon. Member for Berwick-upon-Tweed (Mr. Beith) and the hon. Member for Tewkesbury (Mr. Robertson) on 14 November 2000,Official Report, columns 602–03W.