Mr. Michael Jabez FosterTo ask the Secretary of State for Health how many(a) children and (b) adults are currently suffering from Proteus syndrome; what is their age profile; and what training is given to paediatricians and others in the NHS to recognise and treat the condition. [61619]
§ Mr. HuttonThe information requested is not held centrally. Paediatricians are initially in the lead in diagnosing this rare disorder and in working through the options available for treatment—which can range over a number of specialist services depending upon the severity and manifestation of individual cases. Diagnosis and treatment options for Proteus syndrome form part of paediatricians' education and training.