§ Mr. Laurence RobertsonTo ask the Secretary of State for Health what training doctors receive in diagnosing and treating people with Prader-Willi syndrome; and if he will make a statement. [149673]
717W
§ Mr. HuttonThe diagnosis of Prader-Willi syndrome forms part of the training curriculum for all paediatric specialists. Specialists involved in the diagnosis include paediatric endocrinologists and geneticists as well as developmental or neurological specialist paediatricians.
§ Mr. Laurence RobertsonTo ask the Secretary of State for Health what discussions he has had with health authorities about the diagnosis and treatment of children with Prader-Willi syndrome; what NHS funding is available for the diagnosis and treatment of such children; and if he will make a statement. [149684]
§ Mr. HuttonPrader-Willi syndrome (PWS) is usually diagnosed within the community child health services. The process of diagnosis can be a long one, as it may take some time of observation and multidisciplinary assessment to distinguish from other developmental or behavioural problems.
Records of expenditure relating specifically to children suffering from PWS are not available centrally. Packages of care reflecting the child's individual needs are drawn up locally with parents, specialist clinicians and other agencies.