§ Mr. Rooker
To ask the Secretary of State for Health what data his Department has collated concerning the incidence in the United Kingdom of congenital central hypoventilation syndrome (Ondine's curse); and if there is any record of a patient outgrowing the disorder. 583W
§ Mr. Horam
The Department does not collate this data. The national health service executive is currently funding a research project into the management of children who require long-term ventilation support. This study includes the collation of data on children affected by congenital central hypoventilation syndrome. There is no record of a patient outgrowing this condition.