HL Deb 28 July 1998 vol 592 cc188-9WA
Lord Morris of Manchester

asked Her Majesty's Government:

Whether they will set out in the Official Report their response to the points made in the Haemophilia Society's letter to the Department of Health of 24 June about the debate on 5 June concerning financial assistance for people with haemophilia infected with hepatitis C. [HL2944]

Baroness Jay of Paddington

My right honourable friend the Secretary of State for Health has today written to the Haemophilia Society in response to its letter of 24 June, which was addressed to the Baroness Ramsay. With their permission, I shall place a copy in the Library.

Lord Morris of Manchester

asked Her Majesty's Government:

When they expect to announce the outcome of the Secretary of State for Health's consideration of the case for financial help for people with haemophilia who were infected with hepatitis C by their NHS treatment; and whether the announcement will be made by oral statement to Parliament. [HL3058]

Baroness Jay of Paddington

My right honourable friend the Secretary of State for Health has today written to the Haemophilia Society explaining that, after lengthy and very careful consideration, we have concluded that haemophiliacs who have been infected with hepatitis C through National Health Service treatment should not receive special payments.

Government policy is that compensation or other financial help to particular patients or groups of patients is only paid out where the NHS or individuals working in it have been at fault. The needs of people whose condition results from inadvertent harm are met from benefits available to the population in general. On that basis, we have decided not to make an exception to the general rule in the case of haemophiliacs infected with hepatitis C.

While the society makes a special case for haemophiliacs because the infection comes on top of a pre-existing serious long term medical condition, the same considerations apply to other individual patients and groups of patients, whether inadvertently infected with another illness or harmed as a result of another medical or surgical procedure, who can only obtain compensation if there has been negligence. The society also argued that, as government provides financial help to haemophiliacs infected with HIV, this scheme should be extended to cover people with hepatitis C. However our view is the circumstances were different: the stigma around HIV at the time the original decision was taken, the fact that it was generally considered a sexually transmitted disease and that haemophiliacs could inadvertently infect their partners were all important considerations which do not apply to hepatitis C.

The society was particularly concerned that young people were fearful of the possibility of passing on hepatitis C. That is a concern we share. The department is therefore working with the society to develop a project aimed at helping young people with haemophilia and related disorders who are infected with hepatitis C to understand their condition and so improve their future health, education and employment prospects. We will help with funding for this project.

In an earlier decision, we have already agreed that recombinant Factor VIII is made available to children under 16 and to new patients.